Jean Purcell

Life to the End



Posted: Wednesday, March 04, 2009

by Jean Purcell
OpineBooks.com

Tim Bowen makes sense about life and death. I met him this morning in the newspaper. He wrote of "very special moments--moments of living life to the fullest," and he focused on "what might be."

Bowen's focus on the "now" of life, the treasured moments, told me that he knows the issues of life. He also knows about assisted suicide and hospice care debates.

Reading his words, I caught a simple new awareness about assisted suicide: It is as much (or more) about life as it is about death. 

The very special moments of life include people who are old, ill, or incapacitated. The very special moments "might have been missed completely," as Tim Bowen said, had those who thought of assisted suicide had gone for it.   

Life and Death are like two weights of a double scale. Assisted suicide sits on the Death side and assisted living with constant care weighs heavily on the Life side.

Helen, a big influence on many people's lives, expected to die three nights ago. Helen not only thought Sunday night was her last; she welcomed the thought and we heard her anticipation of Heaven. She has been hospitalized countless times in the past 20 years, yet never has she seemed to give up or want to die. 

But on Sunday night Helen believed that the end was near. Those with her heard her good-byes to visitors and callers, through labored breathing. Her feelings were amazingly strong for her condition, and she was still life-filled with good memories, and love.



She had been in the hospital for one day. The medical prognosis was very bad--heart failing and lungs filling with fluid. She had IV hydration drip, catheter, IV for heavy pain meds, heart-help patch, and an oxygen mask. 

Helen is in end-of-life care at North Florida Regional Hospital in Gainesville, and her children have prepared to register her for hospice care, on doctor's advice. There is no doubt she needs attentive medical care and comfort.   

For many like Helen, death appears to be standing close by. In her mind, continuing to live has suddently come to represent feeling that she is becoming a burden.



Yet the large, four-generation extended family here has witnessed what Tim Bowen was talking about in the newspaper today. There are "special moments of living life to the fullest,"  he wrote, that not only the patient will miss; those who have been part of that life will be robbed of special moments. Those who help that life end before its appointed time will be robbing others of full moments of any life and love.

One cannot help wondering if many people are forgetting or have never known many special moments of life. Helen is blind, but she has never been blind to life and all its moments. An excellent cook and artist, loyal friend, mother, mother-in-law, grandmother and great-grandmother, she has always lived life to the full, in realness and goodness, a saint with human weaknesses.

During two days of waiting for death to come, Helen discussed with her doctor his views about extreme measures. We do not believe she wanted assisted suicide, for that would be against her Christian beliefs. However, she was open to anything that would not allow her life to be prolonged.
 
"We are not in the business of extreme measures," the doctor said, regarding shortening life. Yet, he and a nursing staff are keeping her comfortable by controlled and approved means.

What would Helen already have missed, if her time to die had come on Sunday evening as she expected?

She would have missed seeing her oldest sister for the first time in several years. She would have missed giving that gift. Both of them would have missed the heartfelt laughter, tears, hugs, and kisses exchanged in a hospital room for a brief, memorable time.

She would have missed seeing her oldest grandchild, who lives far away and arrives tomorrow, with a special blanket bought months ago, for "the next time I see Grammy." How quickly the need to give immediately can come.  

She would have missed the recent call from another granddaughter who wanted to remind her of something. To her, Helen made the first mention of "when I get over this" and what they might do together in the future. How quickly a corner of life can be turned, from worst to better!
 
She would have missed the other grandchildren and great-grandchildren, many of whom lived near her during her decades living in Florida.
 
Whatever one's belief about life and assisted suicide, their two scales weigh differently in the balance. The "alive now" weighs heavily on the side of life; assisted death removes what might have been--good moments between people in vital relationships and the love exchanges that make each day better.        

Helen and everyone else had accepted that she likely had a short time to live. Everyone, including Helen, was wrong. Now, we know that hope has sent forth a little spark in Helen, too. Unpredictably her situation and her expectations seem to have begun to make a slow U-turn.  

No one knows what the future holds for Helen. The detailed funeral arrangements, which she directed to everyone on Sunday through labored breathing, have been put aside. 
 
This is our experience so far of what a stranger to us, Tim Bowen, wrote about today in the newspaper. His words appeared on the day Helen's children prepared for her hospice care instead of her funeral. 
 
Mary Helen, as some of us know her, will soon be 90. That is about the age that Grandma Moses began to paint. If Mary Helen survives to go into hospice care in the next several days, only God knows how long she may remain there.
 
No one knows whether--like some--Helen may one day leave hospice and return home. That is our hope, and we are making plans for more of what Tim Bowen calls "very special moments." They are part of life, the future, and hope.
 
Mary Helen lives in Maryland and was visiting family in Florida when she became ill. Her full life, rich in meaning, is not done yet. She is my mother-in-law.
Tim Bowen is president of the 18-county Haven Hospice in Florida.  His article, "A Better Choice," appears in The Gainesville Sun, editorial page, Wednesday, March 4, 2009.
 
 
Jean Purcell -- "I owe all to Christ." Find her blogs for writers through Opinari Writers at http://opinariwriters.blogspot.com and http://authorsupport.blogspot.com.

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Top-level comments on this article: (5 total)
» left by Michael Ramzy 3 years 81 days ago.
49 fans.
This is a very nice article which reminds us our time here is not necessarily of our choosing. Thanks for writing.
» left by Jean Purcell 3 years 79 days ago.
40 fans.
Michael, I agree with your comment. Often the difficult stages of life remind us of very important truths. Life is a daily gift.Thank you for writing. Jane
» left by Susan Thom
3 years 81 days ago.
179 fans.
hi jane,
 
what a beautifully written article, with a twist at the end.
 
i've never known what to believe about assissted suicide, for i had a different experience with my mother. she was riddled with cancer, in every cell and bone in her body, and her heart would not stop, as a result, she spent 3 months in the hospital, losing weight and getting weaker with every day. she was on so much morphine that the doctors would tell the family that she wouldn't know we were there, and yet, she did, and would talk to us, but she was suffering, and holding on out of worry for her kids, husband, and family. once we told her it was okay to let go, she did, but those 3 months were very difficult to watch, knowing she would never recover.
 
i think there should be certain criteria set in place. my mom was going to lie in that bed until her heart gave out, pure and simple, and the doctors told us every day that she'd never make it through the night. all 4 of her kids were close with her, so we saw her often. so, i still don't know how i feel about it, but thank you for a lovely story of hope and the power of the spirit,
 
best regards,
 
sue
» left by Jean Purcell 3 years 79 days ago.
40 fans.
Dear Sue, Your mother went through a lot, and my heart is touched that you commented. It affects the loved ones deeply. Thank you for your comments and honest questions. I think so much at the end of life baffles us. I am glad that no storm lasts forever. We could not survive that. A friend, Jane
» left by Steve Radford
3 years 81 days ago.
44 fans.
Thanks for writing this wonderful article. Steve
» left by Jean Purcell 3 years 79 days ago.
40 fans.
Dear Steve, Your thank you is much appreciated. I am thankful that Tim Bowen wrote that wonderful op-ed that inspired me to open up and share. Thank you for helping me know it was worth the writing. Jane
» left by David Pekrul
3 years 81 days ago.
70 fans.
Your wonderful article brought a story to mind. The other evening I was holding a funeral visitation. The deceased was 91 years old and I listened to family members tell wonderful, warm and humourous stories about her. Her son told me that the day before his mother died, he asked her how to make bread pudding. She was apparently a great cook, and her son wanted to see if her mind was still as sharp as it had always been. His mother went on to tell him in detail how to make a bread pudding. (She had not lost any of her memory; still very sharp.) When the son left the room, his mom complained to the others in the room, "I wish that boy would write the recipe down, so he doesn't have to keep asking me." The whole family laughed and could not stop talking about it. They enjoyed their mother's company and wit right up to the end.
» left by Jean Purcell 3 years 79 days ago.
40 fans.
Dear David, The timing for you to hear that story was perfect for us, and thank you for passing it along. Your story has been shared with family here and is so like what we are experiencing. Life is a vital force. God bless you. Jane
» left by David Tanguay
3 years 80 days ago.
189 fans.
I enjoyed reading this article very much, thanks for sharing
» left by Jean Purcell 3 years 79 days ago.
40 fans.
Dear David, I am glad you enjoyed the article. It's part of Helen's continual giving just by being here. Thanks for taking time to comment. This topic has me by the collar. Jane
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